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"Connecting with Born 2 Battle..."

Welcome to Connecting ALS. On this week's episode we welcome in the hosts of the podcast Born 2 Battle, Chris Beckette and Nathaniel Palone, to discuss the origin of their show and their plans to continue raising awareness for ALS.

"Voting in 2020..."

Welcome to Connecting ALS. For this week's episode, we welcome voting rights expert, Dara Baldwin, Director of National Policy for the Center for Disability Rights, to discuss how to vote during a pandemic and what to consider if you're facing mobility and motor function challenges.

"The Critical Role Physical Therapy Plays in Multidisciplinary Care…"

Welcome to Connecting ALS. To kick off National Physical Therapy Month, we are joined by Dr. Shannon Terrell, a physical therapist at Kaiser Permanente Skyline Medical Offices in Colorado.

"A Sunny Conversation…"

Welcome to Connecting ALS. This week we chat with ALS advocate Sunny Brous, who shares how she finds hope and maintains connections during what has been a rollercoaster of a year.

"Living With ALS When A Natural Disaster Hits…"

Welcome to Connecting ALS. This week we are joined by Donnie Graham and Jan Steinbock, who tell us how they are facing wildfires and a global pandemic with ALS.

"Injecting a Dose of Hope and Urgency in the Fight…"

Welcome to Connecting ALS. This week we continue the discussion around Amylyx Pharmaceutical’s phase 2 clinical trial results of AMX0035, which was shown to slow down progression of ALS in trial participants.

"Expediting Access to a Promising New ALS Drug…"

Welcome to Connecting ALS. This week we dig into the latest development out of Amylyx Pharmaceuticals, which recently announced findings of a phase 2 clinical trial of AMX0035, a drug compound shown to be safe and clinically effective at slowing down disease progression.

"College in 2020 and Resources for Families Facing ALS..."

Welcome to Connecting ALS. This week we discuss what back-to-school means in 2020 for families impacted by ALS.

"Hearing Directly From the ALS Community Through ALS Focus…"

Welcome to Connecting ALS. This week we turn our focus to ALS Focus, a survey platform that brings the needs and perspectives of people living with ALS to the center of our fight.

"Looking at the Link Between Exposure to Algal Blooms and ALS…"

Welcome to Connecting ALS. This week we talk to Dr. Elijah Stommel, a neurologist at Dartmouth-Hitchcock Health and a professor of neurology at the Geisel School of Medicine at Dartmouth, about the connection between exposure to blue-green algae toxins and the development of ALS.

"Perseverance in the Search for Treatments…"

Welcome to Connecting ALS. This week we talk to Dr. Lauren Laboissonniere, a neuroscientist at the Ranum Lab at the University of Florida and a recipient of The ALS Association’s Milton Safenowitz Postdoctoral Fellowship.

"Living in the Present to Enhance Wellness…"

Welcome to Connecting ALS. This week we get ready for National Wellness Month by checking in with Dr. Ellen Langer, a social psychologist at Harvard known as the mother of mindfulness.

"A Conversation with Lorri Carey…."

Welcome to Connecting ALS. This week we talk to Lorri Carey, a veteran leader in the fight against ALS and host of the podcast “I’m Dying to Tell You.”

"Intimacy and ALS..."

Welcome to Connecting ALS. In this episode, we discuss intimacy in relationships where ALS is present with Dr. Alair Altiero of Penn State’s Hershey Medical Center.

"Identifying Red Flags For Off-Label Drug Use..."

Welcome to Connecting ALS. This week, we talk to Dr. Richard Bedlack, director of the Duke ALS Clinic and head of ALSUntangled, about a recent paper he co-authored laying out common red-flags patients need to know about when considering off-label treatments.

"Checking on the Global Fight Against ALS…"

Welcome to Connecting ALS. This week, we commemorate Global ALS/MND Awareness Day with members of the International Alliance of ALS/MND Associations and get an update on the fight against ALS motor neurone diseases around the world.

"Remembering Lou Gehrig on His Birthday and Celebrating Father’s Day With ALS…"

Welcome to Connecting ALS. This week we talk to Larry Falivena about his 2019 tour of Major League Baseball stadiums to raise awareness of ALS, his thoughts on Lou Gehrig’s birthday and why the Iron Horse continues to inspire people today, and how Father’s Day has changed since Larry’s 2017 diagnosis with ALS.

"Partnering With BrainStorm and I AM ALS in the Search for Biomarkers…"

Welcome to Connecting ALS. This week we learn more about The ALS Association’s partnership with I AM ALS to provide a $500,000 grant to BrainStorm to study biomarkers during BrainStorm’s ongoing phase 3 clinical trial of NurOwn.

"Managing COVID-19 and Social Distancing While Living With ALS..."

Welcome to Connecting ALS. This week we talk to three families who share their experiences living with ALS during the COVID-19 pandemic.

"The Future of ALS Clinical Trials…"

Welcome to Connecting ALS. On this episode we talk to Dr. Merit Cudkowicz about the impact of COVID-19 on conducting clinical trials.

"Helping Kids Affected by ALS..."

Welcome to Connecting ALS. This week we look at the devastating impact ALS has on kids and the ways we can help.

"The Impact of ALS on Families, Mother’s Day, and Creating New Traditions…"

Welcome to Connecting ALS. For our Mother's Day episode we talk with one family about how they're creating new traditions while living with ALS.

"Helping Students Overcome the Devastating Financial Impact of ALS…"

Welcome to Connecting ALS. This week we talk about the Jane Calmes ALS Scholarship Fund, which is currently accepting applications from people affected by ALS who wish to pursue college degrees or vocational certificates.

Call for Mother's Day Stories

Mother's Day will be here before you know it and we've been thinking it would be great to share some amazing stories of moms in a special episode.

"Creative Volunteering During COVID-19 and Long-Term Trends..."

Welcome to Connecting ALS. This week we celebrate National Volunteer Week by exploring some of the creative ways volunteers are continuing to serve the community during COVID-19.

"Bioethics and Hospital Care During the COVID-19 Pandemic …"

Welcome to Connecting ALS. In this episode we look into health care scarcity and rationing during the COVID-19 pandemic and what people living with ALS can do to prepare.

"Collaboration in ALS Research and the Implications of COVID-19 ..."

Welcome to Connecting ALS. In this episode we are focusing on collaboration in ALS research and implications of the COVID-19 pandemic.

"Telehealth and the Evolution of Clinical Care During COVID-19 …"

Welcome to Connecting ALS. In this episode we are focusing on the evolution of clinical care during the COVID-19 pandemic and how telehealth has quickly moved from an ideal to a reality.

BONUS EPISODE: "Staying Focused Through COVID-19..."

A quick check-in with Calaneet Balas to discuss how The ALS Association is staying focused on mission delivery through COVID-19.

"How the ALS Community Continues to Advocate During the COVID-19 Pandemic..."

Welcome to Connecting ALS. In this episode we are focusing on advocacy during the COVID-19 pandemic and how you can influence legislation from home.

"What the ALS Community Needs to Know Right Now About COVID-19 … "

Welcome to Connecting ALS. In this episode we are focusing entirely on COVID-19 and what you need to know.

“Helping People Live Longer and Stronger With ALS...”

Welcome to Connecting ALS, your weekly podcast from The ALS Association. This episode centers on helping people living with ALS and their caregivers live longer, better lives.

"ALS Research Now and Into the Future..."

Welcome to Connecting ALS, what is now a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter.

"Parenting While Living With ALS and A Moment With Don and David..."

Welcome to episode 10 of Connecting ALS.

Bonus Episode: "A Moment With Sarah"

In this bonus episode we continue our ongoing 'A Moment With...' series.

"ALS Research and the Therapy Development Process..."

Welcome to episode nine of Connecting ALS.

Brought to you by The ALS Association. © 2020 The ALS Association