Displaying episodes 31 - 60 of 90 in total

"Managing COVID-19 and Social Distancing While Living With ALS..." [Replay]

Welcome to Connecting ALS. This week's episode is a replay of one of our favorites from 2020; we talk to three families who share their experiences living with ALS during the COVID-19 pandemic.

"A Look Back on the Year in ALS Care Services…"

Welcome to Connecting ALS. This week, we are joined by Lori Banker-Horner, The ALS Association’s director of clinical programs and Leslie Ryan, the Association’s director of education and professional development programs, to reflect on the delivery of clinical care in 2020 and to look ahead to the coming year.

"A Look Back on the Year in ALS Advocacy…"

Welcome to Connecting ALS. This week, we are joined by Abram Bieliauskas, associate director of government affairs at The ALS Association, to reflect on some big wins for ALS advocates in 2020 and to look ahead at the fights to come in 2021.

"Exploring What We Know About the COVID-19 Vaccines…"

Welcome to Connecting ALS. This week, we are joined by Dr. Clifton Gooch who takes us through the latest news on the COVID-19 vaccines, explains their safety and efficacy, and talks about what they mean for people with ALS.

"A Look Back on the Year in ALS Research…"

Welcome to Connecting ALS. We are joined by Dr. Jill Yersak, vice president of mission strategy at The ALS Association, who walks us through some of the highlights in ALS research from 2020, how ALS researchers persevered through the pandemic, and what has her excited heading into 2021.

"Digging into the ACT for ALS…"

Welcome to Connecting ALS. We are joined by Sen. Lisa Murkowski (R-Alaska) to discuss the ACT for ALS bill, the Senate’s push to double funding for the ALS Research Program at the Department of Defense to $40 million, and why she became a leader in the fight against ALS.

"A Veteran’s Day Conversation…"

Welcome to Connecting ALS. This week, we honor Veteran’s Day by talking to John Hartwell, who reflects on his military service and living with ALS during a pandemic.

"Honoring ALS Caregivers During Family Caregivers Month…"

Welcome to Connecting ALS. This week, we kick off Family Caregivers Month with Grace Whiting, president and CEO of the National Alliance for Caregiving.

"Dr. Lou Libby Helps Honor Respiratory Care…"

Welcome to Connecting ALS. This week we commemorate Respiratory Care Week by welcoming back Dr. Lou Libby, a practicing physician with Oregon Clinic and the lead Pulmonologist at The Providence ALS Center.

"Last Minute Tips on Voting While Living with ALS…"

Welcome to Connecting ALS. In this bonus episode, Lee Page provides guidance on casting in-person votes while dealing with mobility challenges and a global pandemic.

"Survivability Data Adds to Urgency to Make AMX0035 Available…"

Welcome to Connecting ALS. This week, Mike and Jeremy talk to Dr. Sabrina Paganoni, co-director of MGH Neurological Clinical Research Institute and principal investigator of the CENTAUR trial evaluating the effects of Amylyx Pharmaceutical’s AMX0035 on people living with ALS.

"Connecting with Born 2 Battle..."

Welcome to Connecting ALS. On this week's episode we welcome in the hosts of the podcast Born 2 Battle, Chris Beckette and Nathaniel Palone, to discuss the origin of their show and their plans to continue raising awareness for ALS.

"Voting in 2020..."

Welcome to Connecting ALS. For this week's episode, we welcome voting rights expert, Dara Baldwin, Director of National Policy for the Center for Disability Rights, to discuss how to vote during a pandemic and what to consider if you're facing mobility and motor function challenges.

"The Critical Role Physical Therapy Plays in Multidisciplinary Care…"

Welcome to Connecting ALS. To kick off National Physical Therapy Month, we are joined by Dr. Shannon Terrell, a physical therapist at Kaiser Permanente Skyline Medical Offices in Colorado.

"A Sunny Conversation…"

Welcome to Connecting ALS. This week we chat with ALS advocate Sunny Brous, who shares how she finds hope and maintains connections during what has been a rollercoaster of a year.

"Living With ALS When A Natural Disaster Hits…"

Welcome to Connecting ALS. This week we are joined by Donnie Graham and Jan Steinbock, who tell us how they are facing wildfires and a global pandemic with ALS.

"Injecting a Dose of Hope and Urgency in the Fight…"

Welcome to Connecting ALS. This week we continue the discussion around Amylyx Pharmaceutical’s phase 2 clinical trial results of AMX0035, which was shown to slow down progression of ALS in trial participants.

"Expediting Access to a Promising New ALS Drug…"

Welcome to Connecting ALS. This week we dig into the latest development out of Amylyx Pharmaceuticals, which recently announced findings of a phase 2 clinical trial of AMX0035, a drug compound shown to be safe and clinically effective at slowing down disease progression.

"College in 2020 and Resources for Families Facing ALS..."

Welcome to Connecting ALS. This week we discuss what back-to-school means in 2020 for families impacted by ALS.

"Hearing Directly From the ALS Community Through ALS Focus…"

Welcome to Connecting ALS. This week we turn our focus to ALS Focus, a survey platform that brings the needs and perspectives of people living with ALS to the center of our fight.

"Looking at the Link Between Exposure to Algal Blooms and ALS…"

Welcome to Connecting ALS. This week we talk to Dr. Elijah Stommel, a neurologist at Dartmouth-Hitchcock Health and a professor of neurology at the Geisel School of Medicine at Dartmouth, about the connection between exposure to blue-green algae toxins and the development of ALS.

"Perseverance in the Search for Treatments…"

Welcome to Connecting ALS. This week we talk to Dr. Lauren Laboissonniere, a neuroscientist at the Ranum Lab at the University of Florida and a recipient of The ALS Association’s Milton Safenowitz Postdoctoral Fellowship.

"Living in the Present to Enhance Wellness…"

Welcome to Connecting ALS. This week we get ready for National Wellness Month by checking in with Dr. Ellen Langer, a social psychologist at Harvard known as the mother of mindfulness.

"A Conversation with Lorri Carey…."

Welcome to Connecting ALS. This week we talk to Lorri Carey, a veteran leader in the fight against ALS and host of the podcast “I’m Dying to Tell You.”

"Intimacy and ALS..."

Welcome to Connecting ALS. In this episode, we discuss intimacy in relationships where ALS is present with Dr. Alair Altiero of Penn State’s Hershey Medical Center.

"Identifying Red Flags For Off-Label Drug Use..."

Welcome to Connecting ALS. This week, we talk to Dr. Richard Bedlack, director of the Duke ALS Clinic and head of ALSUntangled, about a recent paper he co-authored laying out common red-flags patients need to know about when considering off-label treatments.

"Checking on the Global Fight Against ALS…"

Welcome to Connecting ALS. This week, we commemorate Global ALS/MND Awareness Day with members of the International Alliance of ALS/MND Associations and get an update on the fight against ALS motor neurone diseases around the world.

"Remembering Lou Gehrig on His Birthday and Celebrating Father’s Day With ALS…"

Welcome to Connecting ALS. This week we talk to Larry Falivena about his 2019 tour of Major League Baseball stadiums to raise awareness of ALS, his thoughts on Lou Gehrig’s birthday and why the Iron Horse continues to inspire people today, and how Father’s Day has changed since Larry’s 2017 diagnosis with ALS.

"Partnering With BrainStorm and I AM ALS in the Search for Biomarkers…"

Welcome to Connecting ALS. This week we learn more about The ALS Association’s partnership with I AM ALS to provide a $500,000 grant to BrainStorm to study biomarkers during BrainStorm’s ongoing phase 3 clinical trial of NurOwn.

"Managing COVID-19 and Social Distancing While Living With ALS..."

Welcome to Connecting ALS. This week we talk to three families who share their experiences living with ALS during the COVID-19 pandemic.

Brought to you by The ALS Association. © 2020 The ALS Association